Allie LaForce: Help Cure HD Founder
Updated: May 7
Allie LaForce was born on December 11, 1988 in Vermilion, Ohio.
As a teenager, she won Miss Ohio Teen USA. She represented Ohio on the national stage at Miss Teen USA 2005 and took home the crown.
As the pageant’s title-holder, LaForce made several appearances across the United States to promote drug and alcohol awareness.
Allie married Joe Smith, a major league pitcher for the Houston Astros, in 2015.
The couple founded the HelpCureHD foundation to help those suffering from Huntington’s Disease and to help find a cure. With over 30,000 individuals affected by Huntington’s a year and more than 150,000 at risk of developing the condition, their goal and mission is to help eliminate the gene one PGT-IVF birth at a time. Many people with Huntington’s disease, or at risk of it, would like to know if there are ways to have children without passing the disease on to the next generation. The short answer is yes! ‘Assisted fertility’ techniques are one area where scientific progress can make a real difference right now to the future of HD families. Several choices are available to people who are either at risk of Huntington’s disease, or have had a positive gene test. I had the amazing opportunity to interview Allie! What if I don’t want to know my HD status?
“That’s ok. My husband, Joe, is at risk and he has chosen not to know his status. We still are participating in PGD-IVF to make sure we have HD-free babies. Yes, if he found out his status, and did NOT have HD, we could have children naturally. But he is not ready to know, and I respect that with all my heart. We are blessed to have the financial ability to go through IVF to guarantee our kids will never have to experience Huntington’s Disease. We feel very blessed, and are helping other families do the same. Everyone deserves choices.
Can you test a fetus for Huntington’s Disease?
You genetically test the embryos for HD once they are created. You then transfer the embryos that tested negative. Therefore transferring an HD free baby.
How many babies are born with Huntington’s Disease?
This number is relatively unknown because so many people either do not know they are at risk, or choose not to know. Roughly 20,000 people have been diagnosed in the United States. I can only imagine how many more are at risk. For every person with HD, their children each have a 50% chance of having it as well.
Tell us how your nonprofit is helping women have HD free babies.
HelpCureHD.org is helping families have HD free babies by providing the financial support and the clinic relationships to go through with the procedure if you are at risk and in financial need. We have accepted 24 families to date, and our application is open for anyone who is qualified to apply. We have had three HD free babies born so far, and many families pregnant currently! We hope to raise enough money, with your help, to never turn anyone away from our financial assistance.
Go to their website to learn more and donate: www.helpcurehd.org